so I am breaking my little unwritten rule and posting on Rebecca's blog. there have been alot of 1st's this year for me. most are obvious. some are very private. As milestones go, new year's eve has always been a time of melancholy...a time of consideration of what has gone on...painful analysis of where one is in their life. what something has meant, an event, a memory...and how the course of one's life may change as a result of something that has happened in the past year. it is a time to formulate a new plan. it is good to have a framework so long as you don't hold it too tight. because you never know what is to happen.
we all have our private pain...our sad story. everyone's sad story impacts them profoundly. some people's sad story impacts others as well. sometimes competition develops. who was a better friend. who mourns more. who remembers better. but time passes and memories fade. I don't know how I feel about that. so 2013 will be the 1st year in 31 yrs that Rebecca was not on this earth. the world is a worse place for that absence. I miss you more than I can say,
Monday, December 31, 2012
Saturday, September 22, 2012
the "how are you?" question & feelings about fundraisers
here are 2 recurring themes...how to answer the "how are you?" question and feelings on having fundraisers.--mom
"yodel,
sorry, been sorta anti facebook as of late. it just kinda...doesn't interest me anymore (or i like to prove to myself that i'm no slave to anything!)
Man, feels real awkward telling people to give you money. heh. i mean, its one thing to just have it appear, but its another to go "oh yea, you know, that sounds good, just give me some cash lady"
:)
Hope you've been well. yea, i hate the "how are you" question, but i always have. I mean, really, i guess, if you were to ask that, my thinking is mostly "well, what exactly do you want me to answer to that?" Heh, i could tell you literally how i'm feeling at that moment (usually about the same give or take some intensity). Or i could give you a recount of the past few months which have been badly uneventful (if that makes sense. like, there hasn't been any good news really. but there hasn't been any drastic emergencies or developments that i know of). or, would a simple "oh, just hanging in there" suffice? i never really know why people ask such a question cuz i never really am sure what kinda answer they think they're gonna get. And if i DID answer with "oh man, i'm just GREAT, its summer, i'm loving my life and everything is just as beautiful as it can be"...would anyone actually believe me or would i soon be committed to a mental ward b/c how could that truthfully be my answer?? hehe.
Ok, sorry, i've literally been up ALL night, its now 10a. i wasn't up for any real good reason except that while watching Bill Maher last night i finally picked up a knitting project i started back in march and have sadly neglected even tho i have NOTHING to do and should be whipping out a few full afghans a week or something. I really got some good progress on the knitting, and just didn't want to stop, next thing i knew it was almost 4a. so then it was 5a. and then i realized the fundraisers tonight and perhaps i should be nice n rested so i can prance around it acting like the happiest inoperable cancer patient you ever did see, while awkwardly shaking hands and 'receiving' people as if it was some sorta twisted wedding day, and i'm the bride. i guess that'd make the groom cancer tho, and that's pretty grim. maybe more like, sweet sixteen? bat-mitzvah? Quinceneira? i dunno, its so odd, like, i dress up cute, and work the room like nobody's business, being dragged from person to person (at least, thats how the fundraisers in the past have gone). cuz its like EVERYone wants to chat me up...ooh la la its like being a celebrity. eeehhh...but in the back of my mind its some morbid bizarre circus cuz uh....its NOT celebrity! its freakin' cancer. aaaannnywho, so that was all to have explained why i'm blabbing away. b/c i should be tired. i should be sleeping. instead i'm on facebook (and hence why i've been trying to be anti facebook).
B"
"yodel,
sorry, been sorta anti facebook as of late. it just kinda...doesn't interest me anymore (or i like to prove to myself that i'm no slave to anything!)
Man, feels real awkward telling people to give you money. heh. i mean, its one thing to just have it appear, but its another to go "oh yea, you know, that sounds good, just give me some cash lady"
:)
Hope you've been well. yea, i hate the "how are you" question, but i always have. I mean, really, i guess, if you were to ask that, my thinking is mostly "well, what exactly do you want me to answer to that?" Heh, i could tell you literally how i'm feeling at that moment (usually about the same give or take some intensity). Or i could give you a recount of the past few months which have been badly uneventful (if that makes sense. like, there hasn't been any good news really. but there hasn't been any drastic emergencies or developments that i know of). or, would a simple "oh, just hanging in there" suffice? i never really know why people ask such a question cuz i never really am sure what kinda answer they think they're gonna get. And if i DID answer with "oh man, i'm just GREAT, its summer, i'm loving my life and everything is just as beautiful as it can be"...would anyone actually believe me or would i soon be committed to a mental ward b/c how could that truthfully be my answer?? hehe.
Ok, sorry, i've literally been up ALL night, its now 10a. i wasn't up for any real good reason except that while watching Bill Maher last night i finally picked up a knitting project i started back in march and have sadly neglected even tho i have NOTHING to do and should be whipping out a few full afghans a week or something. I really got some good progress on the knitting, and just didn't want to stop, next thing i knew it was almost 4a. so then it was 5a. and then i realized the fundraisers tonight and perhaps i should be nice n rested so i can prance around it acting like the happiest inoperable cancer patient you ever did see, while awkwardly shaking hands and 'receiving' people as if it was some sorta twisted wedding day, and i'm the bride. i guess that'd make the groom cancer tho, and that's pretty grim. maybe more like, sweet sixteen? bat-mitzvah? Quinceneira? i dunno, its so odd, like, i dress up cute, and work the room like nobody's business, being dragged from person to person (at least, thats how the fundraisers in the past have gone). cuz its like EVERYone wants to chat me up...ooh la la its like being a celebrity. eeehhh...but in the back of my mind its some morbid bizarre circus cuz uh....its NOT celebrity! its freakin' cancer. aaaannnywho, so that was all to have explained why i'm blabbing away. b/c i should be tired. i should be sleeping. instead i'm on facebook (and hence why i've been trying to be anti facebook).
B"
Tuesday, May 22, 2012
Becca's Poem
by Serena Love Bonita on Tuesday, May 22, 2012 at 5:04pm ·
Anybody who knows anything about me knows I am a poet. They also know how much I love my friend Becca who passed in March. The way I write is I have to wait to be inspired to write something. I get a line in my head and I start with it and just keep going until it's finished. I was waiting and waiting for Becca's poem to come to me and it hadn't yet until today. Roanne posted up a picture of her and it inspired this piece. This will forever be Becca's poem from me.
Becca
sometimes i can't look at your picture
it hurts too much to know you are not here
with the radiance in your eyes
and the smile on your face
even though you were sick
you sit there
frozen in time
fresh off a twirl on the dance floor
or a twirl in the air
you capoeirista
you beautiful spirit
you funny spit fire
cancer took you from us
it took your joy
it took your health
but it never took your spirit
defiantly you lived
when no one knew how long you would
defiantly you danced
and sang
and went to school
and had fun
even though that demon cancer
wanted you in bed
sick
and wanted you gone
defiantly you lived
you laughed in cancers
face
with every hearty laugh
you released
from your throat
you did that
until your body couldn't take anymore
until your body could no longer
hold your spirit down
your body was no longer
you
but a thing that was holding
you
your spirit too big to be contained
so it had to release you
to a place much bigger
than the dimensions of your room
of the city of chicago
of the world you travelled
your spirit was so much bigger than that
you needed to be in the universe
in the air
in our hearts
you needed to be above us
laughing with us at the jokes
and the good times
crying with us when it gets hard
dancing with us when we dance
doing all the things you couldn't do
in that body
in that room
you deserved so much more
than the world gave you
but i am glad there were times
when you recieved the best
i hope you know that we all love
you more than we ever let on
and we tried to tell you often
how loved you are
our beautiful Becca
you touched us all
and people who didn't even know you
you are legendary
you are wonderful
you are the shit girl
and that hasn't changed
just because you aren't here
we all miss you so much
but are so happy
that you are no longer in pain
because you did not deserve it
we love you so much
and hope you are partying it up
with your dad
and loving heaven
because you deserve that
just know that sometimes
it's hard to look at pictures of you
cause it just reminds us,
that you aren't here.
Becca
sometimes i can't look at your picture
it hurts too much to know you are not here
with the radiance in your eyes
and the smile on your face
even though you were sick
you sit there
frozen in time
fresh off a twirl on the dance floor
or a twirl in the air
you capoeirista
you beautiful spirit
you funny spit fire
cancer took you from us
it took your joy
it took your health
but it never took your spirit
defiantly you lived
when no one knew how long you would
defiantly you danced
and sang
and went to school
and had fun
even though that demon cancer
wanted you in bed
sick
and wanted you gone
defiantly you lived
you laughed in cancers
face
with every hearty laugh
you released
from your throat
you did that
until your body couldn't take anymore
until your body could no longer
hold your spirit down
your body was no longer
you
but a thing that was holding
you
your spirit too big to be contained
so it had to release you
to a place much bigger
than the dimensions of your room
of the city of chicago
of the world you travelled
your spirit was so much bigger than that
you needed to be in the universe
in the air
in our hearts
you needed to be above us
laughing with us at the jokes
and the good times
crying with us when it gets hard
dancing with us when we dance
doing all the things you couldn't do
in that body
in that room
you deserved so much more
than the world gave you
but i am glad there were times
when you recieved the best
i hope you know that we all love
you more than we ever let on
and we tried to tell you often
how loved you are
our beautiful Becca
you touched us all
and people who didn't even know you
you are legendary
you are wonderful
you are the shit girl
and that hasn't changed
just because you aren't here
we all miss you so much
but are so happy
that you are no longer in pain
because you did not deserve it
we love you so much
and hope you are partying it up
with your dad
and loving heaven
because you deserve that
just know that sometimes
it's hard to look at pictures of you
cause it just reminds us,
that you aren't here.
Friday, May 18, 2012
to jared (feb 2011)
this is a response to a fb message from one of bec's many on-line relationships. altho they never met in person, this guy and bec shared something special and this was a mostly positive email.
yo. you just popped up on my newsfeed, and it made me realize i never replied to a really gorgeous and genuine email you sent me a while back.
And while I was (and for the most part, still very much am) in a strange, mostly NOT good state of mind, I do want you to know that for whatever reason (b/c in all honesty, I suppose there's not a whole helluva lot of depth to our relationship. hehehe, its always just been an online amicable mutually respectful one). But for whatever reason, your comments always mean a ton to me.
you have a way of coming off as one of the most absolute genuine people i know (and as i just said, i don't truly "know" you. hehehe, i've never even actually heard your voice!)
And while I don't want to answer your previous email in too much detail, b/c again, I was in a much much MUCH worse state back then, it's somewhat improved these days in terms with just getting by day to day. but I'm still nowhere near the "me" i was. And for the most part, I've learned that the only way I am capable of getting by day to day, is to almost ignore all of the horrendous unspeakably unfair and scary crap that has and is happening to me.
but you included a portion of a poem that somehow slipped past the fortress of fear and sheer depression that had dropped itself around me at that moment, and while i can't say "it saved me!" it did for a moment, give me a momentary glance back at the fact that i'm human. and despite my anger at the world, and how much i hate this disease, the fact that i and so so so many others have to suffer in such ways. I had spun myself down into the deepest hole i've been in during the entire five (yes, can you believe, its been FIVE years as of feb. 23 that i was first diagnosed) years. I could have been that deep numerous times before but I had a really good ability to always find a way to not slip that far. Most of the time the thing I would do is simply take every and any chance to appreciate something. everyone always says things like "always appreciate the little things in life" and most of them say it with emptiness, never truly having knowledge of HOW to actually do this. But I felt I had achieved just that. sometimes I would wake up and before even opening my eyes i would be still and feel the sunlight streaming through the window on my face, I would try to be conscious of every bone/muscle/tendon in my body and think to myself "right at this very moment, i'm relaxed, warm, rested, there's no aches, pains, cramps." (i did this ALOT after my surgery when i was recovering, since i thought learning to appreciate those times would help me heal faster). but I started to do that all the time, to all types of things. I would go to starbucks, have a nice little exchange w/ the barista dude, the drink would be especially tasty, and I would walk out to the neighborhood I worked in and look around to realize i love the neighborhood, and i love my job, and the drink was awesome, and people are good, etc etc.
I was never able to be classified as "perky"or "upbeat", so its not that these thoughts permeated me and translated into me being saccharine sweet. I just felt this was one method that helped me stay sane when life also took a liking to punching me in the face repeatedly with unfairness. i was never a particularly religious person. I know many who go through life-altering things such as cancer or other disease, that somehow do end up turning to religion of some sort. Not only did I not do this, but things that have happened in my life only serve to distance me even more from the idea of god in any of the various manifestations he is presented as. I can't justify anything by any of the religions i know about. if anything, I only get more angry if I do think about the role of god. But I do believe in humanity. and your unexpected, sincere email and poem gave me that momentary glance back into what i do believe which is (in convenient bullet points for dramatic effect):
I AM human.
Humanity is a sumptuous thing
I'VE been lucky enough to have experienced it on many levels in its full grandeur BECAUSE of disease.
Most people will probably never know the full extent of it.
So, from the bottom of whatever is left of my heart, Thank you. :)
(oh, this isn't quite an email that says, "so even tho i still have cancer, I am rejuvinated back to the more hopeful person I was prior and am gonna fight like hell". So, no worries on that end. Its simply that those were things your email made me think of, and i feel bad i never shared that back with you. Most days I still do feel VERY un-human. And chronically refer to myself as "NOT normal". Which i whole-heartedly believe, and need noone to try and convince me otherwise. it is what it is. BUT, for a tiny moment, your email reminded me of something. And i liked that something.)
(here is the poem. I e'd the guy who sent this to bec. needed to read what gave her that peaceful feeling.--mom)
Summer Day
Who made the world?
Who made the swan, and the black bear?
Who made the grasshopper?
This grasshopper, I mean-
the one who has flung herself out of the grass,
the one who is eating sugar out of my hand,
who is moving her jaws back and forth instead of up and down-
who is gazing around with her enormous and complicated eyes.
Now she lifts her pale forearms and thoroughly washes her face.
Now she snaps her wings open, and floats away.
I don't know exactly what a prayer is.
I do know how to pay attention, how to fall down
into the grass, how to kneel in the grass,
how to be idle and blessed, how to stroll through the fields,
which is what I have been doing all day.
Tell me, what else should I have done?
Doesn't everything die at last, and too soon?
Tell me, what is it you plan to do
With your one wild and precious life?
mary oliver
yo. you just popped up on my newsfeed, and it made me realize i never replied to a really gorgeous and genuine email you sent me a while back.
And while I was (and for the most part, still very much am) in a strange, mostly NOT good state of mind, I do want you to know that for whatever reason (b/c in all honesty, I suppose there's not a whole helluva lot of depth to our relationship. hehehe, its always just been an online amicable mutually respectful one). But for whatever reason, your comments always mean a ton to me.
you have a way of coming off as one of the most absolute genuine people i know (and as i just said, i don't truly "know" you. hehehe, i've never even actually heard your voice!)
And while I don't want to answer your previous email in too much detail, b/c again, I was in a much much MUCH worse state back then, it's somewhat improved these days in terms with just getting by day to day. but I'm still nowhere near the "me" i was. And for the most part, I've learned that the only way I am capable of getting by day to day, is to almost ignore all of the horrendous unspeakably unfair and scary crap that has and is happening to me.
but you included a portion of a poem that somehow slipped past the fortress of fear and sheer depression that had dropped itself around me at that moment, and while i can't say "it saved me!" it did for a moment, give me a momentary glance back at the fact that i'm human. and despite my anger at the world, and how much i hate this disease, the fact that i and so so so many others have to suffer in such ways. I had spun myself down into the deepest hole i've been in during the entire five (yes, can you believe, its been FIVE years as of feb. 23 that i was first diagnosed) years. I could have been that deep numerous times before but I had a really good ability to always find a way to not slip that far. Most of the time the thing I would do is simply take every and any chance to appreciate something. everyone always says things like "always appreciate the little things in life" and most of them say it with emptiness, never truly having knowledge of HOW to actually do this. But I felt I had achieved just that. sometimes I would wake up and before even opening my eyes i would be still and feel the sunlight streaming through the window on my face, I would try to be conscious of every bone/muscle/tendon in my body and think to myself "right at this very moment, i'm relaxed, warm, rested, there's no aches, pains, cramps." (i did this ALOT after my surgery when i was recovering, since i thought learning to appreciate those times would help me heal faster). but I started to do that all the time, to all types of things. I would go to starbucks, have a nice little exchange w/ the barista dude, the drink would be especially tasty, and I would walk out to the neighborhood I worked in and look around to realize i love the neighborhood, and i love my job, and the drink was awesome, and people are good, etc etc.
I was never able to be classified as "perky"or "upbeat", so its not that these thoughts permeated me and translated into me being saccharine sweet. I just felt this was one method that helped me stay sane when life also took a liking to punching me in the face repeatedly with unfairness. i was never a particularly religious person. I know many who go through life-altering things such as cancer or other disease, that somehow do end up turning to religion of some sort. Not only did I not do this, but things that have happened in my life only serve to distance me even more from the idea of god in any of the various manifestations he is presented as. I can't justify anything by any of the religions i know about. if anything, I only get more angry if I do think about the role of god. But I do believe in humanity. and your unexpected, sincere email and poem gave me that momentary glance back into what i do believe which is (in convenient bullet points for dramatic effect):
I AM human.
Humanity is a sumptuous thing
I'VE been lucky enough to have experienced it on many levels in its full grandeur BECAUSE of disease.
Most people will probably never know the full extent of it.
So, from the bottom of whatever is left of my heart, Thank you. :)
(oh, this isn't quite an email that says, "so even tho i still have cancer, I am rejuvinated back to the more hopeful person I was prior and am gonna fight like hell". So, no worries on that end. Its simply that those were things your email made me think of, and i feel bad i never shared that back with you. Most days I still do feel VERY un-human. And chronically refer to myself as "NOT normal". Which i whole-heartedly believe, and need noone to try and convince me otherwise. it is what it is. BUT, for a tiny moment, your email reminded me of something. And i liked that something.)
(here is the poem. I e'd the guy who sent this to bec. needed to read what gave her that peaceful feeling.--mom)
Summer Day
Who made the world?
Who made the swan, and the black bear?
Who made the grasshopper?
This grasshopper, I mean-
the one who has flung herself out of the grass,
the one who is eating sugar out of my hand,
who is moving her jaws back and forth instead of up and down-
who is gazing around with her enormous and complicated eyes.
Now she lifts her pale forearms and thoroughly washes her face.
Now she snaps her wings open, and floats away.
I don't know exactly what a prayer is.
I do know how to pay attention, how to fall down
into the grass, how to kneel in the grass,
how to be idle and blessed, how to stroll through the fields,
which is what I have been doing all day.
Tell me, what else should I have done?
Doesn't everything die at last, and too soon?
Tell me, what is it you plan to do
With your one wild and precious life?
mary oliver
Saturday, May 12, 2012
this one's about me.
so this one is about me and my endless prying into bec's life. I make no apologies for it. and this wasn't a message that surprised me. as I have said before, so much in bec's writings wasn't anything she didn't say directly to people. she made it clear to me that I was smothering her. I didn't really care. still don't. it was one of those "between a rock and a hard place" situations most of the time. she insisted on involving me with most of the people she met on her journey but got pissed when she felt I was crossing the line. the role of care-giver is not easy under the best of circumstances. and knowledge is power. I make no apologies for how I got my information. it helped me a great deal to read her posts etc b/c then, I knew what topics to steer clear of and also what topics I needed to steer the conversation towards. she NEVER wanted me to worry about her which I did every minute of every day of this nightmare. so I believe that even though she was resistive to my endless intrusions on her life, it served as a way for me to understand her fears and anxieties without her having to talk about them. this is from 2yrs ago.--mom
"yo.
gotta say, i'm sorry for not being more immediately responsive. i'll confess, part of it is my lazy/unmotivated-ness (it is nothing that can be related to ANY normal persons unmotivated-ness, so please, save yourself the trouble).
and also, the more it comes to my attention that you talk to my mom. i may love my mom. but she is in EVERYthing i do, EVERYwhere. i have a blog, obviously she reads that, i'm signed up on various different cancer support forums (i.e The Colon Club, planet cancer, stupid cancer radio show, etc)) ostomy support forums (united ostomy associates, the kpouch forum, etc) and she also registers for an acct with them all. so basically i have little place to go and vent and complain that she DOESN'T have a way to access and read.
And the only person i could email and talk directly one on one (so that it would be private) was rodney. now that he's not around i find myself freaking out like "who in the hell am i supposed to talk to!? who's gonna understand without going all god, or all mush, or all dumbstruck on me?? NOONE! shit."
so, i guess since i know you talk to my mom, well, its just not the same. rodney eventually started talking to my mom, but b/c he also actually HAD cancer, he understood. there was a line in the sand.
i'm not saying i dont' trust you. and i'm not saying she( mom) even would ever ever ever ask you what i've said. she'd never. but its just simply the sheer fact alone. nothing more, nothing less.
aaaaaaannnywho. i know she's at least made some kinda reference to whats been going on with me the past few days. considering how much i watch her on my computer on facebook (all the damn time! heh) and how little i've been on facebook myself.
B"
"yo.
gotta say, i'm sorry for not being more immediately responsive. i'll confess, part of it is my lazy/unmotivated-ness (it is nothing that can be related to ANY normal persons unmotivated-ness, so please, save yourself the trouble).
and also, the more it comes to my attention that you talk to my mom. i may love my mom. but she is in EVERYthing i do, EVERYwhere. i have a blog, obviously she reads that, i'm signed up on various different cancer support forums (i.e The Colon Club, planet cancer, stupid cancer radio show, etc)) ostomy support forums (united ostomy associates, the kpouch forum, etc) and she also registers for an acct with them all. so basically i have little place to go and vent and complain that she DOESN'T have a way to access and read.
And the only person i could email and talk directly one on one (so that it would be private) was rodney. now that he's not around i find myself freaking out like "who in the hell am i supposed to talk to!? who's gonna understand without going all god, or all mush, or all dumbstruck on me?? NOONE! shit."
so, i guess since i know you talk to my mom, well, its just not the same. rodney eventually started talking to my mom, but b/c he also actually HAD cancer, he understood. there was a line in the sand.
i'm not saying i dont' trust you. and i'm not saying she( mom) even would ever ever ever ask you what i've said. she'd never. but its just simply the sheer fact alone. nothing more, nothing less.
aaaaaaannnywho. i know she's at least made some kinda reference to whats been going on with me the past few days. considering how much i watch her on my computer on facebook (all the damn time! heh) and how little i've been on facebook myself.
B"
Monday, May 7, 2012
what makes me happy dec 2010
this post is in response to a question asked of her by a woman from the cancer community. they apparently met briefly at an I2Y event and became fb friends. this is at least not a dark, depressing or angry post. for a change!--mom
um...what makes me happy? what are my favorite things? cute questions, and i'll try my best to answer them, even while being mildly uncomfortable b/c it almost makes me think about writing my own eulogy (she was a fun loving person who loved sharing time with friends and her dog...)
um, makes me happy...my dog :), writing, engaging in good conversation with new and interesting people, bacon, crocheting, sharing a bottle of wine with a group of good friends, actually let me take back bacon and wine, and just lump that in under the phrase Good Food. I love to draw, and read, and tell stories. i basically looooovvee talking, and do it nonstop.
i love humor, that being people who have it and can make me laugh, and having it myself. i hate being too serious, thats usually something i save for just me, late at night. i love my mom. i love kindness. i love the ocean although i can just barely stay alive if i was thrown in. i love nature, but i'm a city girl at heart (aka, i need the sounds of traffic and noises in general to be comfortable to sleep) i looooooooove horses and that conflicts with my city girl side b/c i would love nothing more than to be an olympic equestrian rider, but you can't "do" equestrian while in chicago unless you're rich and have alot of time to spare....which i never had either.
i love my job, not b/c of what i do, but b/c what my job as a whole does (a music school, we have lessons, dance and music, and we have concerts, bringing lots of world musicians in and exposing people here, but also have a huge scholarship program that offers huge heavy discounts on music lessons for kids who may not other wise be able to afford them, and i'm very proud to work at such a place, and i love each and every person that works there with me, a lovely creative caring awesome group of people.
i love my city, and have alot of pride for it, born and raised, and even though its going to be a high of 20 degrees tomorrow, i still love it here.
ummm....heh...so uh...is that a good start? shall i ask the same questions of you? ;)
..
um...what makes me happy? what are my favorite things? cute questions, and i'll try my best to answer them, even while being mildly uncomfortable b/c it almost makes me think about writing my own eulogy (she was a fun loving person who loved sharing time with friends and her dog...)
um, makes me happy...my dog :), writing, engaging in good conversation with new and interesting people, bacon, crocheting, sharing a bottle of wine with a group of good friends, actually let me take back bacon and wine, and just lump that in under the phrase Good Food. I love to draw, and read, and tell stories. i basically looooovvee talking, and do it nonstop.
i love humor, that being people who have it and can make me laugh, and having it myself. i hate being too serious, thats usually something i save for just me, late at night. i love my mom. i love kindness. i love the ocean although i can just barely stay alive if i was thrown in. i love nature, but i'm a city girl at heart (aka, i need the sounds of traffic and noises in general to be comfortable to sleep) i looooooooove horses and that conflicts with my city girl side b/c i would love nothing more than to be an olympic equestrian rider, but you can't "do" equestrian while in chicago unless you're rich and have alot of time to spare....which i never had either.
i love my job, not b/c of what i do, but b/c what my job as a whole does (a music school, we have lessons, dance and music, and we have concerts, bringing lots of world musicians in and exposing people here, but also have a huge scholarship program that offers huge heavy discounts on music lessons for kids who may not other wise be able to afford them, and i'm very proud to work at such a place, and i love each and every person that works there with me, a lovely creative caring awesome group of people.
i love my city, and have alot of pride for it, born and raised, and even though its going to be a high of 20 degrees tomorrow, i still love it here.
ummm....heh...so uh...is that a good start? shall i ask the same questions of you? ;)
..
Saturday, April 28, 2012
being alone ans scared and missing rodney dec 2010
this is a fb message to a fairly well-known "cancer-lebrity". after bec's cancer-soulmate and confidant, rodney, died, there was a massive void in her world. she reached out to those whom she hoped could help her fill that void. she never talked to me about dying. she always wanted to spare me any worry....as if!
have you guys done stupid cancer shows about terminal patients? death, all that?
do you know anyone currently, young, and with that kind of diagnosis that perhaps is a good chatty person? i'm sorta in a huge freakout mode here and i just don't know what to do/think/say etc.
not that anyone told me i'm terminal. noone told me to get ready to die soon. but nothing has been going my way (to put it mildly and cutely) and after pretty much 5 years of having to deal with this, i've actually come to a point where its harder and harder to keep holding on to that good ol' hope idea. i am strong, and a fighter, and all that, but it'd be nice to every now n then just have a bone thrown to me. y'know. just gimmie a slight inkling that its not as bad as my minds' eye sees every time i get a second to let my mind wander.
i had a really really good friend that had stage 4 colon cancer i grew really close to. he passed away in august. since he's been gone i've come to realize not just that i was really close to him but that he was pretty much the ONLY...literally the absolute only person on this earth that i could actually talk to in full...talk about all my thoughts, be they morbid, silly, sick, stupid, scary, whatever. i thought i had others who i could talk to like that (or maybe i thought i was so "open" and communicative of a person that i could find anyone to talk to in that manner) so since he's been gone i've realized just how untrue that was.
i know lots of survivors and current patients. but most everyone i know is either well past their treatments and diagnosis living much more cancer-free than i. or they're just undergoing treatments or surgery and things are going well enough and they weren't as severe as i apparently was (i guess i like to think i wasn't too bad off. maybe that was that good ol' hope i had so much of). so i find when i try to talk about the crazy things in my head i find they don't relate or can't relate or its just not appropriate to approach as a topic with them.
other "survivors" have gone through their share of crazy shit with cancer and surgeries and treatments. but they're not in the thick of it. So if i wanted to turn to them and talk about my fear of one day getting up, and the next thing i know i'm rendered incapacitated by some side effect of the cancer and not being able to speak for myself and being stuck in a hospital on machines in a horrible state until i die...well, as soon as i open my mouth i shut it b/c they're such damn positive people, they're gonna give me an answer that (while may be a wonderful understanding nonjudgmental caring answer) will probably make me feel even worse or want to punch them in the face.
the friend that i lost in august, we could talk about these morbid types of things with all honesty and bluntness, i never felt or feared he'd think i was too pessimistic or whatever.
i've tried psychotherapist types when i was rediagnosed in 2008 and i hated it. i guess mostly b/c i knew this person would never give me the answers i wanted to hear (which was how i could be rid of this cancer permanently) so i never really looked into therapy shit again.
but i don't really know what to do. sit here with scary crazy thoughts in my head that i can't share with the only person i could consider close to me at this moment (which is my mom) b/c i don't want to worry or scare her anymore than i know she is.
i just thought...you know, for once, imerman angels isn't gonna be of use to me. i don't want to hear from someone who's been there and made it to the other end rah-rah yay go team go! kinda shit.
i need to be able to talk to people who A) aren't going to feel bad for me or god forbid say the line "well, i know its no where near or can't compare to what you are going through or must be feeling right now, but..."
(i absolutely HAATTTEEE when people, even cancer survivors i know, put that in ANY part of our conversation)
and B) truly honestly know what i'm talking about. I dont have a husband or kids of my own. so i don't have the "i must be brave and fight to stay alive to see my kids grow up, or to grow old with my husband"
i'm young, single, i never got to have a career, i never got to do half the things many people feel entitled to (own a home, have a new car, follow my lifes dream, be married, have kids, pursue a passion, blah blah blah)
i talk to so many survivor types or current patient-types who even though they are young, i cannot relate to them whatsoever. i'm covered in tattoos. i grew up going to hip hop shows. i live in the middle of the city with a roommate. i've never lived in any other place but here. i've never owned a car within the same decade that we are in. grew up poor, pretty much have always been eeking on middle class. was the first child to get a college degree (and i'm the youngest in my fam, two older brothers, well....)
barely anyone i've met relates to me much.
sorry. i did not intend this to be so long, i swear. its like word vomit. it just pours out of me sometimes when i least expect it :)
anyway. the basic gist of this mssg was just, do you know anyone that i may be able to connect with?
sincerely
Me.
have you guys done stupid cancer shows about terminal patients? death, all that?
do you know anyone currently, young, and with that kind of diagnosis that perhaps is a good chatty person? i'm sorta in a huge freakout mode here and i just don't know what to do/think/say etc.
not that anyone told me i'm terminal. noone told me to get ready to die soon. but nothing has been going my way (to put it mildly and cutely) and after pretty much 5 years of having to deal with this, i've actually come to a point where its harder and harder to keep holding on to that good ol' hope idea. i am strong, and a fighter, and all that, but it'd be nice to every now n then just have a bone thrown to me. y'know. just gimmie a slight inkling that its not as bad as my minds' eye sees every time i get a second to let my mind wander.
i had a really really good friend that had stage 4 colon cancer i grew really close to. he passed away in august. since he's been gone i've come to realize not just that i was really close to him but that he was pretty much the ONLY...literally the absolute only person on this earth that i could actually talk to in full...talk about all my thoughts, be they morbid, silly, sick, stupid, scary, whatever. i thought i had others who i could talk to like that (or maybe i thought i was so "open" and communicative of a person that i could find anyone to talk to in that manner) so since he's been gone i've realized just how untrue that was.
i know lots of survivors and current patients. but most everyone i know is either well past their treatments and diagnosis living much more cancer-free than i. or they're just undergoing treatments or surgery and things are going well enough and they weren't as severe as i apparently was (i guess i like to think i wasn't too bad off. maybe that was that good ol' hope i had so much of). so i find when i try to talk about the crazy things in my head i find they don't relate or can't relate or its just not appropriate to approach as a topic with them.
other "survivors" have gone through their share of crazy shit with cancer and surgeries and treatments. but they're not in the thick of it. So if i wanted to turn to them and talk about my fear of one day getting up, and the next thing i know i'm rendered incapacitated by some side effect of the cancer and not being able to speak for myself and being stuck in a hospital on machines in a horrible state until i die...well, as soon as i open my mouth i shut it b/c they're such damn positive people, they're gonna give me an answer that (while may be a wonderful understanding nonjudgmental caring answer) will probably make me feel even worse or want to punch them in the face.
the friend that i lost in august, we could talk about these morbid types of things with all honesty and bluntness, i never felt or feared he'd think i was too pessimistic or whatever.
i've tried psychotherapist types when i was rediagnosed in 2008 and i hated it. i guess mostly b/c i knew this person would never give me the answers i wanted to hear (which was how i could be rid of this cancer permanently) so i never really looked into therapy shit again.
but i don't really know what to do. sit here with scary crazy thoughts in my head that i can't share with the only person i could consider close to me at this moment (which is my mom) b/c i don't want to worry or scare her anymore than i know she is.
i just thought...you know, for once, imerman angels isn't gonna be of use to me. i don't want to hear from someone who's been there and made it to the other end rah-rah yay go team go! kinda shit.
i need to be able to talk to people who A) aren't going to feel bad for me or god forbid say the line "well, i know its no where near or can't compare to what you are going through or must be feeling right now, but..."
(i absolutely HAATTTEEE when people, even cancer survivors i know, put that in ANY part of our conversation)
and B) truly honestly know what i'm talking about. I dont have a husband or kids of my own. so i don't have the "i must be brave and fight to stay alive to see my kids grow up, or to grow old with my husband"
i'm young, single, i never got to have a career, i never got to do half the things many people feel entitled to (own a home, have a new car, follow my lifes dream, be married, have kids, pursue a passion, blah blah blah)
i talk to so many survivor types or current patient-types who even though they are young, i cannot relate to them whatsoever. i'm covered in tattoos. i grew up going to hip hop shows. i live in the middle of the city with a roommate. i've never lived in any other place but here. i've never owned a car within the same decade that we are in. grew up poor, pretty much have always been eeking on middle class. was the first child to get a college degree (and i'm the youngest in my fam, two older brothers, well....)
barely anyone i've met relates to me much.
sorry. i did not intend this to be so long, i swear. its like word vomit. it just pours out of me sometimes when i least expect it :)
anyway. the basic gist of this mssg was just, do you know anyone that i may be able to connect with?
sincerely
Me.
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